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Australian Brain Tumour Support Groups

Patient Forum, Sydney, Friday May 8th 2015. Register now at the Brain Tumour Alliance Australia site, www.btaa.org.au for program details and accommodion support.

 
 

 
 
     
 
 
 

Please consult Brain Tumour Australia Information
www.btai.com.au for more information and resources relating to Brain Tumours

A Brain Tumour Support Group provides the opportunity for you to meet with other people living with a brain tumour or caring for someone diagnosed with a brain tumour. Group members may range from being newly diagnosed, to living with a brain tumour for some time.


NSW
 
Hunter Brain Tumour Network: Meet first Wednesday of each month at 11am. Location is South Leagues Club, Llewellyn Street, Merewether; there is ample car parking, and ramps for disabled access. Meetings are informal and patients, family members, carers and those whose lives have been impacted by a brain tumour are welcome. After our informal meeting, there is the opportunity for participants to stay on and socialise over a coffee or lunch.The interest of health professionals is appreciated in referring people. Contact Kaye Duffy at kduffy42@gmail.com or phone 02 4929 6924 for information.

Liverpool Hospital: contact Kylie Wright, Neurosurgical CNC/Nurse Case Manager
02 9828 4078 or KylieM.Wright@sswsahs.nsw.gov.au or Teresa Simpson, Senior Oncology Social Worker, Teresa.simpson@sswahs.nsw.gov.au

Westmead: The Neuro- Oncology Information Network [NOgIN]: contact Emma Everingham, Clinical Nurse Consultant Neuroscience phone 02 8837 8926; 02 8837 9000, or
everinghame@ramsayhealth.com.au. This is joint support and information group for patients/carers from Westmead Hospital and Westmead Private Hospital who have had treatment for brain tumours;
www.westmeadprivate.com.au/News/NOgIN.aspx
www.sydneybrainandspinesurgeons.com.au/nogin.html

The Prince of Wales Hospital, Randwick: Contact Alanah Bailey 02 9382 3802 or
alanah.bailey@sesiahs.health.nsw.gov.au
A general Cancer support group, meetings held monthly on the second Wednesday from 2-4pm

Brain Cancer Support Group St Leonards: North Shore Hospital
Ph (02) 9926 8724 or (02) 9926 8753


Central Coast: Contact Colleen Stevens, Neurology Cancer Nurse Coordinator 0243 202 187 or
cstevens@nsccahs.health.nsw.gov.au
Informal support and education meetings held monthly on the third Thursday, 10am-12 at Cancer Council, Erina, for people with primary brain tumours, their families, and carers.


Victoria - Melbourne
   
The Alfred Hospital: contact Helen Mott 03 9276 3369.
Austin Health - Cancer Services: contact 03 9496 3315, PO Box 5555, Heidelberg VIC 3084.

Royal Melbourne Hospital: contact Marcia Fleet 03 9342 4589

BrainLink Brain Tumour Support Group in conjunction with Southern Health: contact Brainlink on 1800 677 579 or email admin@brainlink.org.au runs a support group for those with a primary malignant brain tumour, and for their carers (family & friends). Meet monthly at Blackburn


Queensland -  Brisbane & Townsville
   
The Cancer Council of QLD Brain Tumour Support Service: has prepared a specific Brain Tumour resource in the Understanding Cancer Series. Contact Cancer Support Coordinator, Group Programs, Cancer Council Queensland, 553 Gregory Terrace, Fortitude Valley QLD 4006.

Princess Alexandra Hospital: contact the part-time brain tumour support officer

BrizBrain: contact the brain tumour support officer support officer 07 3833 2500


Gold Coast
   
A support group meets on the 3rd Wednesday of each month at 10.30 a.m. at the Tugun Surf LIfe Saving Club. Contact Pete McLaughlin 0422784885 or 07 5598 3709.
Email:
petershark72@hotmail.com


ACT
   
ACT Brain Tumour Network: contact Susan Pitt (62470632) or
susan.pitt@netspeed.com.au


South Australia
   
Adult Brain Cancer Support Association: contact  Andy Stokes 0403356492 or
a.r.w.stokes@bigpond.com Meetings last Saturday of each Month


West Australia
   
James Crofts Hope Foundation: The monthly support group is held on the last Tuesday of every month and is facilitated by the Neurological Council of WA. Check the website for details.


Online – Australia National
   
OzBrain Tumour: A Web based/Internet support group for patients and care givers. Some of the group members have lots of experience, all of them have some experience — the idea here is that the learning and support and friendship with people who share your situation may give you strength and confidence to deal with your own situation. www.health.groups.yahoo.com/group/OzBrainTumour

Cancer Council Brain Tumour Patients Telephone Support Group: Tel 13 11 20.
Being telephone-based, you can join the group from anywhere in Australia. All you need is an hour, a telephone and a quiet, private space. Participation is free and confidential. Two trained co-facilitators coordinate the groups. Groups meet the FIRST and THIRD Monday of each month, and runs for an hour.
 

Contact

Please direct feedback or questions to the webmaster.

Postal Address:
PO Box 47
Kotara NSW 2289
Australia
Email: webmaster@btai.com.au