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Australian Brain Tumour Support Groups
 
 

 
 
     
 
 
 

Please consult Brain Tumour Australia Information
www.btai.com.au for more information and resources relating to Brain Tumours

A Brain Tumour Support Group provides the opportunity for you to meet with other people living with a brain tumour or caring for someone diagnosed with a brain tumour. Group members may range from being newly diagnosed, to living with a brain tumour for some time.


NSW
 
Hunter Brain Tumour Network: contact Kaye Duffy at kduffy@hunterlink.net.au or phone 0413 275 853.Meet third Sunday afternoon of each month in central Newcastle. Meetings are informal and patients, family members, carers and those whose lives have been impacted by a brain tumour are welcome. The interest of health professionals is appreciated in referring people.

Liverpool Hospital: contact Kylie Wright, Neurosurgical CNC/Nurse Case Manager
02 9828 4078 or KylieM.Wright@sswsahs.nsw.gov.au or Teresa Simpson, Senior Oncology Social Worker, Teresa.simpson@sswahs.nsw.gov.au

Westmead: The Neuro- Oncology Information Network [NOgIN]: contact Emma Everingham, Clinical Nurse Consultant Neuroscience phone 02 8837 8926; 02 8837 9000, or
everinghame@ramsayhealth.com.au. This is joint support and information group for patients/carers from Westmead Hospital and Westmead Private Hospital who have had treatment for brain tumours;
www.westmeadprivate.com.au/News/NOgIN.aspx
www.sydneybrainandspinesurgeons.com.au/nogin.html

The Prince of Wales Hospital, Randwick: Contact Alanah Bailey 02 9382 3802 or
alanah.bailey@sesiahs.health.nsw.gov.au
A general Cancer support group, meetings held monthly on the second Wednesday from 2-4pm

Brain Cancer Support Group St Leonards: North Shore Hospital
Ph (02) 9926 8724 or (02) 9926 8753


Central Coast: Contact Colleen Stevens, Neurology Cancer Nurse Coordinator 0243 202 187 or
cstevens@nsccahs.health.nsw.gov.au
Informal support and education meetings held monthly on the third Thursday, 10am-12 at Cancer Council, Erina, for people with primary brain tumours, their families, and carers.


Victoria - Melbourne
   
The Alfred Hospital: contact Helen Mott 03 9276 3369.
Austin Health - Cancer Services: contact 03 9496 3315, PO Box 5555, Heidelberg VIC 3084.

Royal Melbourne Hospital: contact Marcia Fleet 03 9342 4589

BrainLink Brain Tumour Support Group in conjunction with Southern Health: contact Brainlink on 1800 677 579 or email admin@brainlink.org.au runs a support group for those with a primary malignant brain tumour, and for their carers (family & friends). Meet monthly at Blackburn


Queensland -  Brisbane & Townsville
   
The Cancer Council of QLD Brain Tumour Support Service: has prepared a specific Brain Tumour resource in the Understanding Cancer Series. Contact Cancer Support Coordinator, Group Programs, Cancer Council Queensland, 553 Gregory Terrace, Fortitude Valley QLD 4006.

Princess Alexandra Hospital: contact the part-time brain tumour support officer

BrizBrain: contact the brain tumour support officer support officer 07 3833 2500


Gold Coast
   
A support group meets on the 3rd Wednesday of each month at 10.30 a.m. at the Tugun Surf LIfe Saving Club. Contact Pete McLaughlin 0422784885 or 07 5598 3709.
Email:
petershark72@hotmail.com


ACT
   
ACT Brain Tumour Network: contact Susan Pitt (62470632) or
susan.pitt@netspeed.com.au


South Australia
   
Adult Brain Cancer Support Association: contact  Andy Stokes 0403356492 or
a.r.w.stokes@bigpond.com Meetings last Saturday of each Month


West Australia
   
James Crofts Hope Foundation: The monthly support group is held on the last Tuesday of every month and is facilitated by the Neurological Council of WA. Check the website for details.


Online – Australia National
   
OzBrain Tumour: A Web based/Internet support group for patients and care givers. Some of the group members have lots of experience, all of them have some experience — the idea here is that the learning and support and friendship with people who share your situation may give you strength and confidence to deal with your own situation. www.health.groups.yahoo.com/group/OzBrainTumour

Cancer Council Brain Tumour Patients Telephone Support Group: Tel 13 11 20.
Being telephone-based, you can join the group from anywhere in Australia. All you need is an hour, a telephone and a quiet, private space. Participation is free and confidential. Two trained co-facilitators coordinate the groups. Groups meet the FIRST and THIRD Monday of each month, and runs for an hour.
 

Contact

Please direct feedback or questions to the webmaster.

Postal Address:
PO Box 47
Kotara NSW 2289
Australia
Email: webmaster@btai.com.au